Hi my name is amanda schultz. I have a 4 year old son payton with the same symptoms of your son since he was 8 months old. At 18 months he was diagnosed with a rare chromosome disorder called HIDS. These are periodic fever disorders and there are about 5 or so of them out there. nobody knows much about them. I was just hoping maybe this could give you a little help and maybe an idea. I know what it's like with no answers! Payton is only 1 of 6 in the us. Please feel free to email me. Good luck to you guys!
First off thank you for taking the time to read anything I write on here. I use this blog to update friends on how my son is growing up, how life is evolving, and anything else that strikes my fancy. (might be a good chance though that it does not strike yours.... :)
2 comments:
Jillian did a great job of posting this on FB so that those of us that are out of the area could still donate by texting! Great cause! Thx Jillian!
Hi my name is amanda schultz. I have a 4 year old son payton with the same symptoms of your son since he was 8 months old. At 18 months he was diagnosed with a rare chromosome disorder called HIDS. These are periodic fever disorders and there are about 5 or so of them out there. nobody knows much about them. I was just hoping maybe this could give you a little help and maybe an idea. I know what it's like with no answers! Payton is only 1 of 6 in the us. Please feel free to email me. Good luck to you guys!
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